With Friends Like These......

Ok, gotta sleep. Leaving tomorrow for Escalante for some canyoneering in Egypt 2. I thought I had a friend coming with me but it looks like I'm flying solo. Beeatch sent me an EMAIL (after I had called several times and sent texts over the past two days) at 4 today saying she was sick, had been since Tuesday and wasn't feeling well enough to travel. Why don't I cut her slack? Because 1)I first spoke with her on Tuesday about going and she jumped all over it. Not once did she mention she was coming down with something, 2) I made the plans around her schedule, 3) I spoke with her Thursday and still no mention of illness; 4) she never contacted me between then and today despite my many attempts to reach her; 5) when I *67'd her tonight at 10:30, she answered, sounded just fine and there was a party going on in the background. When she heard my voice, she hung up without saying a word and 6) I immediately texted her about how lame that was and she never responded. Chicken shit.
Funny, she spent about a half an hour bitching about how one of her good friends told her he couldn't hang out with her 4yo anymore because she was too irritating. He stopped calling, bailed on plans they had, blah blah blah. She was extremely hurt and angry. You would think when something like that happens to you, you don't turn around and be a total turd to someone else.
God I hate my 'friends'. Another one bites the dust. Why can't people just say no in the first place and stop f*&king around with other people's valuable time and energy? I could have planned this trip for a different time and with different people. You don't bail on a roadtrip the day before you're supposed to leave. It's just completely uncool. I had a cold on Wednesday too but it's not stopping me from hitting Escalante on Sunday. If you're truly sick at the time someone calls and invites you somewhere you TELL THEM THAT so that they can plan accordingly. If you don't want to go, you say that immediately. YOU DO NOT WAIT UNTIL THE LAST MINUTE WHEN THERE'S ZERO TIME LEFT FOR THE OTHER PERSON TO FIND ANOTHER COMPANION. That's just plain obnoxious and grounds for a baseball bat to the head. Ugh. Ok, I'm going to sleep now. Toodles!!

Where the Wild Things Are- FILM REVIEW

Saw "Where The Wild Things Are" tonight. Sage loved it and actually sat in my lap the whole time without squirming. My little 3 year old is growing up! As cool as the scenery and the monster puppets were, though, there's not much to engage adults. The boy is a brat with no insight or chutzpah to communicate with the Things and help them understand how to get along and be happy. Max tries to order them around but he's often stumped and silenced when the Things call him out. Finally when he does confess that he's not a Viking King he has absolutely NOTHING to say for himself; no way to elonquently explain why it doesn't matter that he's not a real king. What impresses the most are the Things themselves. The actors (especially James Gandolfini) do a phenomenal job of bringing their beings to life-especially when the 1963 book never explores their characters. This film adaptation by Spike Jonz attempts to put some meat on the bones of a nine-sentence children's story about a neglected little boy who gets sent to his room without supper and finds himself in a far-off land where he finally gets to be the boss and the one showered with attention- even if it is by a bunch of large creatures who thump the ground and roar.
The monster-play in this movie script drags on and on and there's no cool moral that ought to hit your rugrats over the head with. Still, I did shed a tear when Max said good bye to the Wild Things. I hate good byes. If you've got little ones, take them to see it. They'll have nothing to fear.

Three Down; Three To Go

I'll make this one a shorty seeing as how it's five minutes to 2 a.m. and I have to get up at 7 a.m. to do this breast cancer strides walk. Hope talked me into it. I'm not one for getting up this early unless there are killer yard sales or there're two feet of fresh snow at the resorts. The mountains in Utah aren't open yet (that'll come in Nov.) and it's too cold for garage sales. I think it was guilt that motivates me. After Hope's piece on Fox13 (see link in my FB posts), I received a few emails calling me an 'inspiration'. Huh? I'm just doing what I'm told and trying to ignore the fact that I have a life-threatening disease. I finished round three of chemo a week ago and am just fine thank you! Halfway through treatment now. Was a tad queasy last Saturday but that had more to do with lack of sleep and then doing nothing but sit around the house all day. By Monday, I was climbing and jumping on my Stair Master. The past two days have been spent researching the possiblity of doing radiation concurrent with chemo instead of waiting until chemo was done before starting 6 weeks of radiation (which, btw, would mean really f*^king up Christmas and January). I figured since I was handling chemo so well, I could take the extra punch. None of the doctors in Utah seem to be up on this little time saver so I've had to Google like mad and contact cancer hospitals outside of the state. And here I thought the Huntsman Center was state of the art! After my research it seems that not only is CMF/radiation together viable but it may increase the longterm survival rate by 10 %. Plus, it keeps me from dragging my treatment into the next health insurance calendar year. Any sane person wouldn't think twice. The side effects? They tell me my boob might not look as nice. Anyone out there can attest or deny this claim?The stuff I've read so far says there's no difference in looks at the 3 year point. You might be wondering how the twins are holding up at this point. Still small and perky. You can barely tell I had surgery. The scar blends in and there's no divet from the chunk of tumor they removed. Thank you, Dr. Neumeyer! Ryan can even squeeze them now and there's no pain or difference in touch between left and right. If it weren't for my head I could be 'normal' again. My head though constantly takes me on walks where I wonder if there will ever be a time in the future that I can say to someone, "I had cancer" instead of "I have cancer". It's a strange thing to feel like this disease will stick with you longer than family.

Getting Interviewed for Fox 13

Ok, so now I'm a posterchild for Fox 13?? My friend Hope decided that since I'm the only person she knows with breast cancer, I should talk on camera. Hmmm. It took a while for me to say OK. Not because I don't think I have a worthy story but I wasn't sure if I wanted my agent, my 'outside' friends, those who don't know me but will, to know. Cancer is an extremely inconvenient disease. It may not be debilitating at the moment for me but it interrupts my life flow. It turns what was once easy (humming along day to day) into something difficult and it pisses me off. I really don't want to come across as bitter, angry, spoiled or negative. Hope said I was great. A great interview. Of course I was. Broadcast is my thing. It's the message I worry about. I guess I'll just have to wait and see. The piece is set to air before the Cancer Walk on Oct. 9.
As for the rest of my life. Peace has resumed. I'm back from San Diego which turned out to be much less of a vacation than I had hoped. Sage was like the fricking Energizer Bunny and I had no one to hand her off to. It was all me. No daycare, no sitter, no friends. My parents just shook their heads and turned away. That doesn't mean I was disappointed in them. Hell, if I was in a room where a kid was acting like Sage, I would love to walk away. It's just that I couldn't and she wore me down. Which in turn stressed me out because damn it I'm supposed to be doing what I can to get better. Stress does the opposite.
I also made the terrible error in judgment thinking that it would be fun to share a room with my daughter. Next time, she goes someplace else. At least then I will get enough sleep to handle the stress of the day.
I came home to some killer fall Park City weather. It's 83 outside with a cool breeze and vibrantly blue skies at 5:45 p.m. I lifted today and tomorrow I'll try to hike or climb. Best to enjoy the weather before it gets rainy and muddy.

In between debugging my turtle of a laptop (thanks, Vista), I find myself constantly combing through stories of celebrity cancers. Are they dead? What did they have? What stage was it? Was it something complicated? Could it be me next? I can't help myself. It's like watching a trainwreck; sometimes I'm the trainwreck itself. Last year, it would barely be a blip on my radar. This year it means something.
Patrick Swayze gone. The news stimulates the hunt for answers. If it weren't for the obnoxious hematoma/bruise left in the crook of my arm by Nurse Ratchett in the Hunstman Infusion Room, I wouldn't know I have just had my second round of chemo. So I have to keep comparing my 'story' with others'.
The only side effects I had from the first round was hurling Chinese food the night after doing Eskimo rolls at the Ogden Paddle Fest; and the runs one day about a week later. Hair, check. Period, check. Energy, check. Pain free, check. Appetite, check. In fact, I'm stronger than I've been in months thanks to Patrick, my Huntsman personal trainer twice a week. It was actually pretty fricking cool that I had three weeks of no doctors' appointments and no tests for the first time in two months. It was almost like the scare was gone. I did the next round of chemo last Friday and suffered even less. I actually sent emails to my oncology doctor wondering if he was dosing me with a placebo or something. I couldn't believe that I had no dramatic reaction.
Just to prove I wasn't hallucinating, came Round 2. Talk about "pinch me I must be dreaming."
The stint in the arctic Utah Olympic Pool the day before sucked the buoyancy out of my veins. Even after warm wraps, three liters of water and a Lorzapan, nothing. They couldn't find a vein in my right arm anywhere. So they called in the big guns- a grey-haired grandma that yelled "stop it" as she unsympathetically shoved a needle into my arm prompting a terrifying cry to escape my lips. I bit them and the tears developed. The pain didn't end as she continued to shove. "Don't", "Stop it," she said again sharply and sternly. Apparently screaming as you are tortured like a drug smuggler in Turkey will freak out the other guests of Chateau Chemo. Suzanne Sommers blames the chemo treatment for Patrick Swayze's death not his pancreatic cancer. Chemo can cause all sorts of nasty side effects like stroke and leukemia.
My T-Cell count was low on the day of chemo. I was sent back to Huntsman for a Neulasta shot on Sunday. That's to stimulate your long bones like a femur to produce more white cells. Scary. I feel fine but I could still wind up in the hospital with a deadly infection faster than you can whip up a PB&J. They told me that because the count is low to avoid contact with ANYONE- including Sage and Ryan- until I get my shot. And here I am going to a Pig Roast outdoors with a bunch of snot-dripping toddlers who are drinking from Sage's sippy cup and falling on her in the trampoline. One guy there tried to talk me into a drag on his joint as if his next paycheck depended on it. Of course, I said no. Ryan on the other hand, seized the moment. The next day he complains of achiness all over and chills. So I sleep in my office for the next two nights to avoid catching something. I got the shot that morning on my way to the climbing gym. They warned me of deep bone pain as my marrow regenerated TCells. Never happened. Another placebo?? I did feel quite blah on Monday but chalked it up to PMS and the Park City rain. Today, I'm up at 7 a.m. and off to Legoland or Harbor Days in San Diego.
I know I'm not playing some character in a movie where everything is a prop and I can go home at night to a reality that existed before the diagnosis but I can't help wondering whether everything I'm going through is really working when I feel fine. Silly, I know. I should be thankful that not a soul can tell I have cancer; not even me. I shouldn't need to get rushed to the hospital to know I'm taking care of myself. That's just wrong.

P.S. Anyone who tries to tell you how they would want to be treated if they had cancer is full of shit. You don't know until you actually have cancer.

Cancer is unlike any injury, illness, tragedy you will ever have in your life. It hasn't made me a "better person" - I can still be a big bitch - but it's made me part of a tribe. I have a deeper understanding of what my brethren go through and a huge irritation for those who assume to know.

Thanks to my friends for dropping food at my door and taking Sage for a couple of hours on some days. That truly helps!

One Session Down, Five More To Go

It's midnight and I'm scratching my head. I must have missed something right? I know that movies and the WE Channel often exaggerate but after three hours of chemo at Hunstman today the only thing I feel is relieved and suspicious; also a bit anxious because I know CMF can’t be this innocuous. That’s what Dr. Ward prescribed. A cocktail of cyclophosphamide, methotrexate and fluorouracil, which is also known as 5FU (my dad said that one used to be used to grow hair!). Ward choose this path because of the less severe side effects- a strong chance of hair thinning but not falling out, no neuropathy (loss of feeling in toes and fingers which can be permanent in some people), less nausea, no bone pain. Like a walk in the park, right? Both Ward and his assistant Rosie reassured me that given my age, physical conditioning and vitals, I was going to be one of the lucky ones who sailed through this pricky business. I can’t be easily convinced, however, especially not after meeting with 12 women at the Image Reborn cancer retreat who hosted a little show and tell of chemo horror. You would have had to physically walk over and lift my jaw off the floor to get me to shut my mouth. But what can you do? You go in with all of the ‘what ifs’, hope they won’t come true and you jump in. I wanted to get in the race. For three weeks now I’ve had thoughts of ‘treatment’ keeping me up at night. I thought after last week, my labs, my appointment for today, that I was all set.....until I wound up with bronchitis. Sage is sick too and Ryan’s coming down with it. Of course they would postpone my treatment. No such (bad?) luck! We were still a go. They made the call because I didn’t have a fever or chills and was seemingly on the mend. We’ll see what happens now. Nausea and anti-nausea prescriptions in one hand, turkey sandwich and fries in the other, I marched down to the infusion room. I couldn’t have asked for a better seat than the forest green leather Lazy Boy, Chair 10. Tucked back in the corner, I was away from the other chemo patients and their small talk, close to the toilet and the snacks with a closeup view of the construction going on outside the hospital (better than having to face the nurses station for three hours). Nurse KOD (seriously, because there are three Karen’s on deck) gently stroked my right hand and told me how much she was going to like my vein. Interview With a Vampire briefly skipping through my brain. She told it was perfect for the IVs, should go the six session distance (every three weeks) without imploding and safe bet I wouldn't need a chest port for the infusion. A port is a thin plastic tube which is inserted under the skin into a vein near the collarbone (central line) to feed the drugs straight to your heart. Cancer patients love their ports because there’s less vein poking and pain at each session. But with three weeks in between each dosing I’d rather take the needle than have a baby carrot sized scar on my chest. At this point, I insisted on an Antivan- anti-anxiety chewable to relieve dizziness a strong possibility for me when I’m jammed with a needle for an extended period of time. After the initial ah ah ah crescendo that turned a few heads, the needle was in and I felt nothing more. First drip the anti-illness drugs; then the 5FU which can cause cotton mouth and cold sores. (I’m directed to suck on ice chips to hibernate my mouth and make it less susceptible.) Next, methotrexate which will turn my pee yellow (how about purple? I ask, that would be more interesting.) I’m told to flush twice after every potty break to keep any of these toxic secretions from jumping onto skin. Even Ryan must wear a condom or wash immediately after sex. He asked me if I minded him visiting a hooker. I also have to be super duper careful about catching even a tiny cold so I told him hookers will have to wait until after chemo. My white cells will go down and down and down the further into treatment. Not a good time to get sick. I worry about this the most because I get colds easier than catching infield flies. Cyclophosphamide (Cytoxan) came last. Ths one seems to be the biggest Pac Man of blood cells- good and bad- and the one that leaves you most at risk for leukemia, bladder cancer and menopause. Oh joy. I’m supposed to feel the effects in 7-10 days. This is worse than waiting for BAR results! The whole process today wasn’t the least bit scary. There were so many nurses and aides talking at me, I never had a moment to fear. Then Ryan popped in after work to sit with me. He also got the crash course on chemo. My mom Skyped in and I showed her around the room, my IV and Ryan waved hello. Two hours later I was done. I walked out, perfectly capable of driving home (but I didn’t have to). We picked up Sage, went out to dinner then hung out and watched TV- nothing special really. After we got the girl in bed, we talked for a bit about other people, the stock market, needing to clean the house but nothing about today and what we went through. I guess it’s best to internalize for a while. Just take it all in and let it settle. Today was a big deal. On the outside, it didn’t seem anything more than routine and on the inside I don’t feel these drugs killing my little guys yet. But it was a big deal. I’m “in treatment”, I’m “undergoing chemo”, I’m “surviving”. That’s all heavy shit. That’s not what my life is set up to process. Drama yes, heavy shit no. I’m heading off to dream land now before I get weepy but not without nausea meds by the bedside just in case. At the same time, hurling that 10-pound burrito from Loco Lizard tonight might not be such a bad idea….. Some of my friends are figuring out ways to handle this too. The one in the earlier blog who ate my food instead of bringing me some decided to distance herself rather than step up. A friend in need is a friend to weed I guess. Ryan’s folks sent a daisy bouquet mixed in with lemons (ie referencing lemonade when life hands you lemons very cute.) Another friend has offered to stuff my freezer with homemade ziti. I’m thinking right around that Day 7 is perfect. And many many thanks to my ski buddy Louie who rearranged his schedule this morning to drive me to Huntsman. I’m not usually in the habit of asking for big favors that require more than a phone call so I honestly appreciate the effort everyone makes in whatever way they can. Now if I only knew someone who loved to do laundry.....:)

Welcome to Book Passage!

Ok, so now I have a bunch of strangers, checking out my site on an projection screen. Hi, Everyone!
It's part of my journey on Book Passage- a Travel Writer's Conference. I barely hit my flight yesterday morning and, with heart pounding, I shot down the long, enclosed runway for the puddlejumper to Oakland. Today, I'm rested, fed and my ass' still sore. But I'm ready to be a better writer. Back to back sessions delve into the travel writing experience and bringing readers along; the plight between travel essays and travel articles; marketing yourself and your website ... or not. Stay tuned because after everyone looks at this I can guarantee that it will not be the same in the months to come!
No, no, don't worry. I'm not morphing into a different person, less edgy. less entertaining. I'll still be irreverent. I'm just updating the site and its use.